Selena Yorke has Friedreich’s Ataxia, a disease that attacks the nervous system, resulting in problems with speech and muscle movement and in some cases, heart disease and diabetes.
Only 15,000 people in the world have it and there is no cure.
"I can’t do a lot of sports, no more soccer. I can’t run so no track and field. I can’t jump," Selena said on Saturday.
"I hope so much there will be a cure and I won’t have this inside me anymore."
Her family hopes to raise enough money to pay for therapy and to purchase and install devices that will assist with Selena’s mobility, like a stair lift, a vehicle equipped with a wheelchair lift and a recumbent bike.
Tickets to Saturday’s fundraiser at Cascades Casino were sold out, with gifts donated by a range of businesses and organizations from local coffee houses, to Safe Step Walk-In Tubs, to the Vancouver Canucks.
By the end of the night, the event raise a total of $26,000.
"It’s an unthinkable feeling," said Brad Yorke, Selena’s father. "To have friends and family and people we don’t even know giving us support."
If you wish to donate, Selena's family has set up a bank account at Toronto Dominion Bank.
- Acct name: A Night for Selena
- Acct #: 9194-5241677