Wyatt Miville has congenital trismus, an extremely rare disorder that prevents the young boy from opening his jaw.
Doctors at the Children's Hospital of Eastern Ontario (CHEO) said the condition has its ripple effects that kept Wyatt there for nearly the first three months of his life and have sent him back for many emergency room visits.
"It can cause issues of getting food in with any nipple or bottle feeding and it can also have trouble for the secretions, so they often have associated swallowing difficulties," said Dr. Jean-Philippe Vaccani.
"He's already had an episode where we had to perform CPR on him — it was from vomiting," said his mother Amy Miville.
"He started to cry, and then he started to choke and then he lost consciousness, so it's very dangerous."
Hospital has no case history
Wyatt's parents said their son's condition is so rare that CHEO has no case study to look at to help determine a treatment.
"Nobody can tell us if Wyatt is going to be better in two years, five years, 10 years or if he will be eating from a tube the rest of his life," Amy Miville said.
His parents said they've launched a website, called "What's Wrong with Wyatt," in hopes other parents of children with congenital trismus or doctors will reach out.
"He's so normal in every other way," Amy Miville said.
"I want him to have the benefits that my other children have."Suggest a correction