On Thanksgiving weekend my husband rushed me to the emergency room in excruciating pain that emanated from the lower-left side of my back, around my side, to beneath my hipbone. I didn't know what was going on because the pain I experience daily never spreads from around my tailbone.
For the past 36 months -- three years -- I have suffered with unexplained back pain that has been localized to one specific area of my back, roughly an inch away from my tailbone on the left side of my body.
Living with chronic pain is a nightmare of sleep deprivation, being incapacitated and feeling like your body is constantly rejecting itself. Going outside for the limited amount of time my body can handle, I hear micro-aggressions from strangers about how I need to "shape up" because I'm too young to have a disabling condition, or how unproductive I am for not being out in the work force.
People who know about my disability ask when I am going to get pregnant, which means they don't understand that I can barely hold up my own torso let alone carry a child. At some point, every person in my life has made a suggestion that mirrors some of the professional opinions I've heard over the years: that the pain receptors in my body could be alarming off to "false threats," indicating that my mind is preventing my body from relaxing enough to realize that my body is medically sound.
This made me fight a new battle: one where I began doubting my health.
Knowing that my mind latched onto dermatillomania at a young age, I also knew that it was possible that my back could have remained in a spasm after a fall three months before October 2012. By April of 2013, when I couldn't handle the pain anymore, a CT scan was ordered and I later learned that there was a slight scoliosis located in the area that's in pain.
I begged my GP to send me for an MRI, but since I was not an urgent case, the wait can be as high as two years in Halifax, Nova Scotia. For this reason, my husband took the day off of work so we could drive to Antigonish where the wait list for an MRI was only six to eight months because I couldn't bear the thought of being in this much pain for much longer.
After years of seeing chiropractors, massage therapists, physio therapists, a pain clinic, an osteopath, and an orthopedic surgeon, I was told by the ER doctor that the radiologist in 2013 did not include in my CT report that I had scattered diverticuli in my colon. With daily struggles of limited movement in my left leg and inability to stand for five minutes at a time, I saw this diagnosis as a step closer to answers.
Later, it sunk in that one radiologist's choice to not include the diverticulosis diagnosis in my report may have cost me two and a half years of my life that I can never get back.
I was told that the reasoning behind why the radiologist may have decided to omit this information could be because this disease is usually asymptomatic. While Googling this disease, I learned from various websites that Diverticulosis is uncommon in patients under 40 years of age while one-third of the population will have it by the time they are 60. I was 26 when my CT presented evidence of this disease.
Also, when it is present in younger people, it is usually more aggressive. Thirty percent of diverticulosis sufferers have flare-ups which can lead to diverticulitis, what the ER doctor diagnosed me with and gave me powerful antibiotics for.
What right does a medical professional have to not document any abnormality from a scientific scan? What does this do to future research and statistics when professionals choose to dismiss evidence? How are correlations to other health concerns made without evidence-based data when sufferers don't even know they have it? At the time, I could have at least been told to include more fiber in my diet, which is what is often recommended for this condition.
After reading the report my GP gave me on Thanksgiving weekend, I learned that the diverticuli is scattered throughout my sigmoid colon. Curious to freshen up on my basic biology, I found diagrams that show its location to be curving in an S-shape upward into the rectum area -- specifically, the lower left side of the body. I have doctors telling me that there is no possible connection between my chronic pain and this condition, but I've learned that nerves cross each other and pain can be referred from another source in the body. It also sounds possible that a bulge from the colon could hit one or more of these nerves, causing chronic pain symptoms.
This constant pain has also taken away elements of precious moments for me. I was unable to hold my cat when he died because my body wasn't strong enough. I couldn't stand face-to-face with my husband at the altar exchanging vows. After getting injections, electrical stimulation needles, shock wave therapy alongside conventional treatments for pain, I still cannot lie down on my left side without agony. My left glute is inhibited and has deteriorated, and I "count my spoons" to make sure I can make it through each day with the minimal amount of pain possible.
I want to pursue a career.
I want to be able to withstand a trip to the grocery store.
I want the left side of my body to be mirrored to my right side.
I want access to a reliable, timely, and non-judgmental healthcare system.
Now, I wait what I was told may be another year for a colonoscopy and specialist's appointment. If I need surgery to remove the diseased parts of my colon, I will then be put on another waiting list. The worst case scenario is that a colonoscopy, which I would have looked into with my doctor 2.5 years ago, reveals an underlying reason for the pain -- the big C-word.
The longer the wait, the worse other conditions with similar symptoms can become and I now have three years under my belt. While I'm trying not to let my mind wander this path too often and believe the likelihood of cancer is low, it is scary to think how many other people have experienced negligence in medical documentation (and waiting lists), all because one individual in the field of medicine decides to leave out findings in a scan. I deserve to find out the full details of my condition, even if it isn't related to my chronic pain.
Hopefully by October of 2017, this will be resolved and I can pick up life where I left off after five years of going in circles trying to get a diagnosis. In the meantime, I will be waiting. It's all I can do.
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With your hands and feet slightly wider than shoulder-width apart and the arms fully extended, lower your chest to the floor while maintaining a neutral spine in the plank position. As you do this, elevate one foot off the floor squeezing your butt cheeks to activate your gluteals. Alternate sides until you have completed 20 repetitions.
When holding the plank position, ensure that the arms are in a vertical position directly under the shoulders. While maintaining this position, curl your heel to your butt while keeping your knees at the same height and ensuring there is no rotation or movement through the pelvis or torso. Complete 20 repetitions in total.
Same technique tips as level 1, however, the level 2 movement increases the control needed. Complete 20 repetitions in total.
Lift your hip from the floor to activate the obliques and core. Keep your hips low and push up from your arm on the floor. 10 repetitions each side.
Same as level 1, reach your arm overhead to lengthen out the torso, and increase muscle activation and balance. 10 repetitions each side.
Same as the level 2 exercise, this times as you reach overhead, elevate your knee in towards your elbow for more activation and a bigger challenge. 10 repetitions each side
While maintaining a neutral spine, sit your bodyweight down into a squat position until your tailbone drops lower than your knees. Ensure there is no excessive forward flexion of the torso. The distance that your knees travel forward during a squat will be different for each person depending on their limb length, regardless, make sure you keep your spine neutral. Complete 15 repetitions.
Starting with your feet shoulder-width apart and your hands beside your body, take a moderate step forward lowering your knee to about one inch off the floor, while raising your arms overhead. Repeat alternating which leg steps forward for 20 repetitions.
This exercise is used for flexibility in this instance, however, once you have recovered from back pain you can add resistance.
Focus on keeping the lower back in a neutral position with your chest out and legs should-width apart. You should be able to feel the hamstring activation as your pull your upper body from forward flexion back into an upright position. Complete 10 repetitions.
Designed to activate the hamstrings, gluteals and lower back, this exercise is great for strengthening and shaping the back of the legs. Start with your butt touching the floor and then lift to push your hips up as you squeeze your butt cheeks. Complete 10 repetitions.
Same technique as level 1, however, this is the one leg version for people who are looking for an extra challenge. With this level, be sure to avoid any rotation through the pelvis. The challenge is to activate more core and gluteals. Complete 10 repetitions each
In a kneeling position, take the weight forward as you anchor your back knee to the floor. Hold the stretch for five seconds and release. Completes this stretch five times before switching legs.
This stretch can also be done with a bent leg elevated on a bench or chair. Aim to have your pelvis in a neutral position with no rotation, and avoid rounding through the upper back as you stretch forward. Hold the stretch for 20 seconds before changing sides. Complete three sets of 20 on each side.
Basically the same technique as level 1, this move stretches out the hips. You can elevate the back foot to incorporate hips flexors and quadriceps into the stretch as well. Hold the stretch for 20 seconds before changing sides. Complete three sets of 20 on each side.
Lie on your side with the roller at the knee and drag your body along the floor until the roller reaches your hips. Return to the starting position. You can also rotate your body forward or back to target a different part of the leg. Complete five rolls on each.
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