Alzlive is a distinct voice in the online caregiver landscape, devoted to family who are caring for those with Alzheimer’s or other dementia
Alzlive is a distinct voice in the online caregiver landscape, devoted to family who are caring for those with Alzheimer’s and other dementias. The site was the brainchild of Dave Kelso – who has personally witnessed the ravages of Alzheimer’s. Dave wants to help family be the best caregivers they can, through a confounding disease. Alzlive scans the world to find the freshest thinking and innovation. Check out alzlive.com.
Torge, then in her 40s, was fed up with the way she saw facilities for seniors organized. To her they were dreary, patronizing, dull. While she wasn't nearly old enough to live in one herself, she wanted change before she got there. For her, the only solution was to get radical.
When it comes to the smaller financial activities, such as the purchase of a birthday gift, some may feel that if the one with dementia cannot remember the occasion then it is no longer necessary to give a gift. After all, what they don't know won't hurt them -- right?
Everyday infections such as the common cold, a stomach bug, upper respiratory infection or urinary tract infection have been shown to hasten cognitive decline among people with dementia. You don't want to pass along a bug to your loved one, to bring on these afflictions.
While the heat shouldn't prevent you from taking your loved one out for some exercise or fun, it is worth noting that many factors make seniors more prone to heat-related illnesses. Heat stroke can be deadly, and dehydration can worsen dementia symptoms such as confusion, irritability and dizziness.
When it comes to financial matters, communications are necessary in order to avoid or at least minimize family conflict and long term feelings of resentment. It is not unusual for families to struggle with questions on finances and to be concerned about impact on the estate.
There is no right answer regarding end of life care. Your personal choices will be interpreted within an increasingly volatile landscape of changing laws and changing interpretations of the laws alongside changes in our society's acceptance of end of life decision-making.
You will need to pay close attention to financial decisions necessary to protect your housing security. Although a home is often the largest asset owned, it is also the one with the least research and supports available when it comes to Alzheimer's and legal and financial matters.
It is deeply hurtful to even remotely consider that someone from your most trusted group of allies could be intending to take advantage of you when you are most vulnerable, but avoiding this issue only leaves you more vulnerable. Your best line of defence is to increase your awareness on some of the more typical financial threats.
You may be inclined to ignore your finances while dealing with your diagnosis of Alzheimer's, but it is important to begin assessing any financial vulnerabilities you may have. This is not the time to disengage from the management of your financial and legal affairs.
One of the greatest gifts you can give yourself and those who care most about you is the selection of individuals who are capable of carrying out your wishes. This requires taking the time to fully inform these people about your wishes.
There will come a time when your decision making will be increasingly restricted. You can prepare for these changes through planning and communications with trusted people in your life and this can help ensure your autonomy is supported and respected.
Daniel Roebuck's tenderly nuanced performance as his wife' primary caregiver is such a perfectly balanced blend of heartache and hopeful longing, weariness and worry, unconditional love and utter loneliness that his character comes across so authentically, you forget you're watching a movie rather than visiting with a fellow family member impacted by Alzheimer's or dementia.
In the families I've dealt with, there was a sense that after their loved one moved into a care community, the gradual erosion of the relationship with their loved one would suddenly be accelerated to the point that any hope of further connection would forever be lost.
The big "A." The elephant in the room. The dreaded disease you've been forced to think about thanks to Dear Alice and Glen Campbell and so many others whose stories have raised awareness and brought Alzheimer's right into your living room -- and now, maybe right into your life.
But from the moment my mother and grandmother shared with me my grandfather's diagnosis, everything changed. Though my role as national director of sales and marketing memory care for one of the country's largest providers of assisted living was still the same, my motivation was completely different.
Driving is an activity of daily living (ADL) just like getting washed, dressed or cooking. It is an activity that we learn to do once the skills needed to drive have matured. In order to drive safely, we rely on the fine-tuned integration of the necessary physical, visual, cognitive-perceptual, and behavioural skills.
Alzheimer's caregivers are amazingly successful at juggling all of the things necessary to meet the needs of their loved one, but each day they're simultaneously learning how to juggle the many emotions they experience. Anger, guilt, fear and frustration are just a few of the complex emotional balls they are trying so hard to keep in the air.
It is not always easy to recognize elder abuse, particularly if you are the victim. Yet elder abuse is, unfortunately, prevalent in our society. The good news is that there is increased awareness with respect to the existence of elder abuse and its many forms, and numerous resources available to help.
As we became a young adult, our relationship to our parents became different. We still turned to our parents, but more for guidance and support. Never did we imagine or expect that one day we would be the parent to our parent. When did it happen? When was the shift? Now we are the ones in the "worry seat."
There are some things we can do from a distance to increase our full understanding of their situation, to improve the communication we have with them, and to manage the risks inherent in long distance (and close distance) caregiving. All of these suggestions can be done via the internet and phone.