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Deanna Badiuk-Black

President and founder of the Vancouver Acromegaly Support Group

After being diagnosed in 2008 with an ultra-rare disease called acromegaly and realizing there was no support system in Western Canada, Deanna moved to Chilliwack, B.C. and decided to start a support group for acromegaly patients. The support group is based out of Vancouver, BC and services most of Western Canada and maintains close relations with patients across North America and Europe.

Deanna’s focus is to support newly diagnosed patients, by bringing patients and professionals who treat acromegaly, together, during the Fall and Spring of every year. These meetings give everyone involved the information they need to take better care of themselves and improve their quality of life. They also help to bring patients with acromegaly to meet others with the same condition, fostering a supportive environment for all. From working in reinforced concrete, to being second-in-command at a restaurant kitchen, to becoming a Resident Care Attendant, and also a Medical Office Assistant, Deanna truly believes her destiny is to be where she is now: running the Vancouver Acromegaly Support Group.


When she is not working on projects for acromegaly, she enjoys spending time in nature with her husband, fishing and trying to learn how to golf. She also enjoys photographing waterfalls and walking the Vedder River in Chilliwack. In the colder months, Deanna makes flannel rag quilts and spending time with her parents, children, and grandchildren.