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Most people die within two to five years after the onset of symptoms.
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The fact is there will always be people who need help. There will always be critics who seek to divert attention to a "more worthy" cause. But the bigger picture here is a vast community is coming together to raise awareness and drive change. Thanks to the help of social media, people of all ages, professions and life circumstances are donating.
A public decision by Grimes not to partake in the viral ALS "Ice Bucket Challenge" resulted in some deleted tweets and advice from former My Chemical Romance singer (now solo artist) Gerard Way. On Sa...
We know, you've seen plenty of ice bucket challenges at this point — and hopefully have donated to ALS because of it. But for the sake of entertainment, why not take a look at what we think is the mos...
While many of us are just learning what ALS is through the Ice Bucket Challenge, Alberta's John Tuckwell knows the disease firsthand. Tuckwell was diagnosed with bulbar lumbus, a form of ALS (amyotrop...
Who can dump a bucket full of ice water over his head for ALS and not flinch an inch? Vancouver Canucks president Trevor Linden, that's who! The team posted a video of the former captain doing the AL...
Rob Ford isn't afraid of ice-cold water. That's what Toronto's mayor showed after he accepted former Toronto Maple Leaf Tie Domi's call to take the ALS Ice Bucket Challenge, an awareness campaign for...
Yellow Bird Project
In the past couple of weeks, you likely saw plenty of this on the Internet. Celebrities all over the world have been taking the so-called "Ice Bucket Challenge" to raise awareness of Amyotrophic Late...
Kathryn Calder's first reaction when she was asked to be the subject of a documentary film was panic. "I was totally terrified to take on this project," the Victoria-based musician admits. "A film. A...
A few years after his diagnosis with ALS, my dad could no longer breathe independently and he decided to use a ventilator. He wanted to prolong his life for as long as possible to be around for my two siblings and me as we grew up. My dad is still alive today but is now completely paralyzed.
I often get asked about the meaning of my various tattoos. Just this week, one of my yoga teachers pointed out that the marking on my neck is one of his favourite words. Mine too. Grace.
I had never even heard of "FTD" (frontotemperal dementia). Immediately, I hopped online and began researching. Within minutes I discovered the truth -- Dad was going to die. Shortly after that, he began misplacing his words, not knowing how to verbally express what he knew he wanted to say. Soon it got to the point that he could only answer yes or no questions...and then by December 2010, he lost his words entirely.
British Columbia Supreme Court Judge, Madam Justice Lynn Smith has released her reasons for judgment in the ground-breaking physician-assisted suicide case. In her view, a complete ban on physician-assisted suicide was a disproportionate response and a more appropriate response would be to maintain an almost-absolute prohibition but with a stringently limited and carefully monitored system of exceptions.