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A new American study has confirmed what every autism family has heard anecdotally: Accidental death by drowning is a significant risk for kids with autism. Researchers at the Center for Injury Epidemiology and Prevention at Columbia University looked at more than 39 million death records over a 16-year period (up to 2014) to determine the relationship between autism and death by injury.
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New research reveals more and more children are presenting with both disorders.
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You'll understand like never before.
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They welcome travellers of every age.
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There is no cure for autism, but we've had solid peer-reviewed evidence for decades that Intensive Behaviour Intervention (IBI) based on the principles of Applied Behaviour Analysis (ABA) can have a dramatic impact on the development of kids with autism. Unfortunately, the treatment is not covered by medicare across the country.
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Too often well-meaning journalists get it wrong when they write about autism. It's not so much the content of their stories that misses the mark as the language they use to describe autism itself. Reflecting on autism in a more nuanced manner using these basic pointers can help you avoid simplistic depictions and understand the true, lived experiences of those on the autism spectrum and those who support them.
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Our son, Casey, has autism, a neuro-developmental disorder that is often characterized by rigid and repetitive behaviours, difficulty with social communication and uneven intellectual development, among many other challenges. Regular participation in an integrated public school has not always been easy for him.
We are a long way off from identifying definitive biomarkers and personalized gene therapies are likely generations away. The hype is big, but our hope is misplaced. The science isn't there yet, and the sooner we stop putting our faith in near-miraculous breakthroughs, the sooner we can realistically survey the options at hand.
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Over the years, Autism Canada has talked to thousands of parents and there has been a similar refrain. Early diagnosis didn't happen for their children because too many well-intentioned health practitioners and educators dismissed early red flags and parental concerns in favour of a "wait and see" approach.
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My husband and I recently received a note home from the school teacher of our eight-year-old son, Casey. She wanted to inform us that Casey had been caught lying about a misdeed, and that this wasn't the first time. Our response? We whooped and high fived. Yes, that's right -- we gave each other a high five. Why?
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I'm not entirely sure why I write about my personal experiences parenting a child with autism for the mainstream media. Mostly I hope my own experiences may help someone else on their autism journey -- and they won't stumble through, as I have done in the early days. But what I'm never quite prepared for are the letters I get whenever I publish something about autism in the mainstream press. Here are a few responses that never fail to happen.
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It's not an exaggeration to say we have an autism services crisis in Canada. Evidence shows that proper health and educational supports for those affected by autism pay off. Early intervention is key and heads off more expensive and extensive supports that are needed later in life if early intervention is not provided.
Many organizations and affected families across the country have been calling for a national autism strategy. The wide range in disparity of publicly funded services for autism across the country has even generated a kind of "medical migration" with several published accounts of families leaving their home provinces (most commonly, Atlantic provinces, Ontario and Quebec) to move to Alberta or British Columbia where autism services are more readily available and/or more flexible. It is also no longer uncommon to find Canadian families using crowdsourcing campaigns to fund their children's autism and related therapies.