When my son was a toddler, I remember a few events that I declined to attend simply because it was too complicated -- I just didn't have it in me. Looking back at the earlier years, I realize just how little people new about my son and his autism. I think our experience would have been different had others been more aware.
As important as research is, I truly don't believe this should be the number one priority when discussing how to improve the lives of people with autism. How is research helping the autistic individuals living in our society today? The ones that are stigmatized for who they are; the children who are on waiting lists for government funded therapy that unfortunately never comes and whose parents are forced to go privately, depleting finances at an astounding rate. They are not part of an incomplete puzzle. They are here, they are whole and they are deserving of equal opportunities.
Clearly Dr. Shepherd-Look's comments demonstrate how her degree in psychology does little to help her understand autistic children. Perhaps she should speak to autistic people before making such inaccurate, misinformed, misguided and completely ridiculous remarks about the mitigated bonding between mother and child.
There is no question in my mind that parent training has made me a better parent. While there is a difference between the theory and practice of ABA therapy and while there is a difference between being a parent and being a therapist, the knowledge gained from the parent training offered by our early intervention team has been invaluable.
April 2 is World Autism Awareness Day, and April is World Autism Awareness month. Unfortunately, it's no longer uncommon for most of us to know families struggling just to keep up with the day-to-day tasks required of them because they have a child with autism. Here's how you -- as a family member, friend, neighbour or even just as a friendly acquaintance or concerned citizen -- can help families affected by autism.
The 41st Quebec general election is scheduled for Monday April 7, 2014. A new PQ majority government would mean a possible referendum for Quebec separation from Canada in the near future. Yes, I know, we've been down this road before, only now, I have an autistic child who can only speak English. The dynamics have suddenly changed for me. Don't get me wrong, I love this province, I just don't like what's it's become over the last two years but most importantly, it's the uncertainty, the unknown that scares me the most. My son risks being silenced in a province that could, in the future, choose not to recognize his language
I decided to bring to light some information that people should know about Autism Spectrum Disorders (ASD). With a growing number of children living with an ASD, this information will help you better understand the experiences of these children, and their parents. The following are my last five points, though there could have been many more.
I recently noticed that for the most part, when I talk about Autism the people around me don't really know what I am talking about. They all seem to have a vague idea about the problem, but no more. I constantly have to repeat the same information. This demonstrates clearly that we still need to educate people about Autism or ASD.
Raising awareness is often a good first step, and functions well as a means to an end -- but it cannot be viewed as an end in itself. Activism simply does not end with the sharing of a Facebook post or a retweet; it's great to tell your friends that something is important enough to share with them, but it's virtually meaningless if it doesn't lead to further action.