This is another prime example how the rights of special needs children continues to be violated by the same people that are in a position to protect them. The abuser doesn't see these children as whole. They see them as deficient, less than and certainly not worthy of respect and dignity. This principal didn't see them as whole human beings. She saw them as "animals." What message is the school district sending when they fire the person that has reported the abuse?
The problem is that an ASD is a permanent neurological disorder; it doesn't go away, but rather confirms itself over time. As parents of children with special needs, we each have to find our path. Over time, we all find our way. For me this was, and continues to be, a lesson in acceptance and redefining my values.
As important as research is, I truly don't believe this should be the number one priority when discussing how to improve the lives of people with autism. How is research helping the autistic individuals living in our society today? The ones that are stigmatized for who they are; the children who are on waiting lists for government funded therapy that unfortunately never comes and whose parents are forced to go privately, depleting finances at an astounding rate. They are not part of an incomplete puzzle. They are here, they are whole and they are deserving of equal opportunities.
Clearly Dr. Shepherd-Look's comments demonstrate how her degree in psychology does little to help her understand autistic children. Perhaps she should speak to autistic people before making such inaccurate, misinformed, misguided and completely ridiculous remarks about the mitigated bonding between mother and child.
I loved the Salon de l'autisme (Autism Expo) that took place in Laval at the beginning of October. For the first time in a long while, I felt like I was in the right place at the right time with my new foster family. There were information booths everywhere; about a hundred of them; designed to suit all tastes and needs.
It was an ordinary summer day. People were milling on the main thoroughfare, bikes zig-zagging through traffic, cafés and pubs spilling onto the sidewalk, patrons sipping their way through a lazy Friday afternoon. We were ordinary that day too. Just another family, managing the hectic jumble of kids' lessons, bills, our careers, endless streams of birthday parties, too little sleep and the occasional date night out. But it was all shattered with a single word: autism.
Merck now faces federal charges of fraud from the whistleblowers, a vaccine competitor and doctors in New Jersey and New York. Merck could also need to defend itself in Congress: The staff of representative Bill Posey (R-Fla) -- a longstanding critic of the CDC interested in an alleged link between vaccines and autism -- is now reviewing some 1,000 documents that the CDC whistleblower turned over to them.
I understand why people kill themselves. I think about it every day. That's not an exaggeration. It varies how much I think about it each day, but there hasn't been a day in the last six months that I haven't thought about it, and it's been this way since I was about 10. Very very occasionally I get a day where I'm struggling really bad, but I don't want to be dead. But it's not often.
There is no question in my mind that parent training has made me a better parent. While there is a difference between the theory and practice of ABA therapy and while there is a difference between being a parent and being a therapist, the knowledge gained from the parent training offered by our early intervention team has been invaluable.
It is reinforcing to be acknowledged for accomplishing a goal, but for many parents of children with autism the steps toward goals are mini and slow. Take the time to let them know that you notice their parenting efforts and the positive development you see in their child. In other words, be a cheerleader of the process not just the end goal.
Marie Josée explains that there is a beautiful innocence in ASD. A person with autism will never try to manipulate a situation to make themselves look better. They are without malice, and they don't know how to pretend. I say what I need to and I don't mince words! My partner can attest to this. He knows I'm different, that I like to talk about stuff that is real, and he accepts me as I am.
If you are a man and reading this, you might be thinking "But not all men would hurt women." That's true. Not all men would. But all women have been dehumanized by a man. That's what's forgotten in this conversation -- there's so much defensiveness from men. Please listen to what we have to say. We're telling you that this happens enough that every woman has a story. Not all men do this, but enough men do that the default is to be distrustful and wary around men. Elliot Rodger believed in the lies the Men's Rights Activist Movement told him.
There are simply not enough hours in the day for parents of children with developmental challenges to manage the complicated care needs of their sons and daughters. There are a number of ways in which "the system" can work well to support better outcomes for families dealing with developmental challenges.
While watching the Sochi Olympics this past February I was blown away by the prowess of these young athletes defying the laws of gravity, and surprising me at every turn. Then one night I thought to myself that actually, our lives as parents with autistic children are kind of the same. Except we don't win a medal at the end.