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We know that people who have epilepsy are not demonically possessed, but the neurological disorder remains a mystery for far too many people.
Postpartum pre-eclampsia isn't spoken about as much as regular pre-eclampsia. We're led to believe that we have our babies, then we're supposed to be in this land of happiness where everything is sunshine and roses. I'm told that eclamptic seizures often cause coma and death.
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As Charlotte began to starve from not being able to consume food, it seemed inevitable that Dravet Syndrome would claim Charlotte's young life. With nothing left to lose, Charlotte's dad began to research experimental treatments -- he found one case in California, where medicinal marijuana helped to curb violent seizures in a young patient.
For Isabel Estrada, who has danced since she was ten years old, epilepsy didn't simply mean having seizures; it meant something she loved, something she had intended to do professionally, was put in doubt.
When my husband began having seizures several years ago, one of the things that struck me was the reaction of people around him. Certainly there were almost always people who wanted to help, but there were many more who were horrified by what was happening. Their fear inserted itself into the situation like a physical presence.
I'm an endurance athlete with epilepsy. We exist! I've been an active soul my entire life. When I was diagnosed with epilepsy in 2007, I did my absolute best to keep participating in the endurance sports I love.
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Scientific research into the seizure-suppressing effects of the cannabinoids was pioneered by Karler and Turkanis at the University of Utah. Working in animals, they showed that CBD -- which doesn't make you high -- was as good as THC at suppressing seizures.
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With the giant influx of health apps on the market it was only a matter of time before chronic disorders such as epilepsy began drawing the attention of application programmers. For those with epilepsy, this is excellent news.
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The admission to the epilepsy unit lasts about a week, but can be longer in some circumstances. This hospital admission is often memorable and eye opening for patients as they meet other people with epilepsy and share stories with them and their families. They often realize that they are not alone.
Last spring, I joined my daughter Journey's fifth grade class as a volunteer on her field trip. I had the pleasure of watching a classmate approach Journey who was taking photos of a museum exhibit. The classmate suggested she turn off the camera flash; he was concerned that it could trigger one of her seizures. I was overcome with pride and appreciation for the caring, supportive community we have created in partnership with the school administration.
My daughter Journey will not live on a shelf. We may not be able to protect her from every seizure risk and she may incur some injuries now and then, but she will live life fully and share diverse experiences as a result of the collaborative efforts of her family, friends, educational team, and community.
Epilepsy is a common neurological condition. Chances are you know someone who has the condition. In spite of ongoing public awareness and education programs, many myths still exist. It's time to bust some of those myths today!
It starts with the sensation of a light switch being pulled violently behind my eyes. I lose cognitive control quickly. I can't focus on even a simple task, and I forget what I'm doing while I'm in the middle of doing it. I have epilepsy. As a child no one realized I had been having seizures for many years. Instead, they misread my childhood behaviour as misbehaving.