My 13-year-old son Jacob, who has a rare neurodegenerative disorder, was discharged last summer with 24-hour nursing care in our Toronto home. But aside from the fact that nurses can cancel at a moment's notice -- leaving parents like me to pull all-nighters so my son doesn't choke to death -- we're facing alarming incompetence when they do show up.
My son, Jacob, was admitted to the hospital on January 23, 2015 for a respiratory infection complicated by Pelizaeus-Merzbacher disease (PMD), a degenerative neurological disorder. He would turn 13 years old on May 15 and his bar mitzvah, the ceremony and celebration commemorating his entry into Jewish adulthood, was supposed to be May 18.
I don't want to see eight-year-olds with shin splints and 10-year-olds with rotator cuff injuries, which can result from intensive training, but most of all, I want kids to have childhoods filled with physical play of all kinds, play that builds and develops the body in multiple ways so that it stays strong and healthy.