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Scott N. Harrison

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People Living With HIV Are More Than Their Disease

Posted: 11/23/2012 12:00 am

It's not over yet.

World AIDS Day is time for both activism and reflection. Over the past year, the increasing progression of HIV treatment and expanded testing has collided with a Supreme Court of Canada ruling that puts HIV prevention and care under increasing risk and scrutiny.

The legacy of AIDS activism is misunderstood if we imagine that HIV at the individual and global level is just a matter of getting more drugs to more people. In the face of massive despair and loss in the early years of AIDS, attempts to grapple with the effects of an epidemic shone a powerful light on the structural problems in our society.

Nurses saw first-hand that, even if you were once insulated from poverty, discrimination, racism, or heterosexism, acquiring a virus pushed you to the margins of society and away from everything that kept you safe and sane. It was clear that not just individual lives were being destroyed by a virus but vibrant communities were being destroyed by social indifference.

People living with HIV, activists, everyone who fought AIDS named those things that were wrong and formed new coalitions across race, class, and region. Nurses, of course, offered our expertise and empathy, but we also offered a strong analysis of the structural dimensions of injustice. Communities fought back and took care of each other, often through unexpected coalitions, always with extraordinary courage.

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Pharmaceuticals, and to some extent increasing tolerance, have made it possible for many people living with HIV to feel well enough most of the time to work and to carry on with their lives. But the support we provide inside the medical setting does little to ensure that our society supports their lives in the fullest sense. HIV stills reveals the poverty of our social values and the intransigence of the structures that impose those values. Nurses remain intensively involved in HIV research and care, but all of those professional efforts will add up to little if laws, policies, and social attitudes go unchanged. Now, more than ever, it is critical to ground HIV prevention and treatment efforts in a social justice framework that genuinely engages the desires and perspectives of people who face the structural oppression that put them in harm's way.

Our claim as Canadians is that we live in a free and just society, protected by our Charter of Rights and Freedoms. In reality, the face of our legal system for people living with HIV is not the scales of justice, but instead the Judge's gavel; threatening harassment, arrest and charges for 'failure to disclose' HIV status.

This system makes a mockery of efforts to "normalize" HIV and reduce the stigma that prevents people from accessing testing and care. Community tolerance of HIV is directly impacted by our legal system, which is saying loudly and clearly that the responsibility of disclosing one's HIV status rests solely with the positive person. This bypasses all the education and professional advice we give regarding social and personal responsibility for our actions and creates a fertile ground for dialogues of blame around HIV infection.

Focus and intention is required to ensure that those whose voices are not often heard, are given the space and support to be fully included in the contemporary dialogue of HIV. Often, it is a peer who is able to achieve this connection and safely hold this space for a person. Medicalization strips people of the intimacy of their illness, by handing it over to the experts to be dissected, named, numbered and monitored. As nurses, we know the benefit that modern health care has provided to people living with HIV, but we must ensure as technology advances, that we don't lose sight that a person lives with the virus, not the other way around.

 
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It's not over yet. World AIDS Day is time for both activism and reflection. Over the past year, the increasing progression of HIV treatment and expanded testing has collided with a Supreme Court of C...
It's not over yet. World AIDS Day is time for both activism and reflection. Over the past year, the increasing progression of HIV treatment and expanded testing has collided with a Supreme Court of C...
 
 
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02:25 PM on 11/23/2012
This isn't necessarily a comment reflecting you, but rather with the HIV campaign in general.

My issue, is it seems like a noticeable amount of HIV positive activists are trying to dictate to people what their preferences should be for sleeping with someone.

Simply put, sex has been turned down for -much- more trivial things than HIV status. Oh, you're shaved down there? Some won't sleep with you. You're not shaved? You have a tattoo? You don't? Uncut? Cut? Some won't sleep with you, and the list goes on and on.

I can understand having a goal of educating people about the actual risks.
But when you come up to someone who -is- knowledgeable about HIV transmission rates, and is still too uneasy about it to have sex with someone who is HIV positive, then don't badger and demean that person as I've seen it happen way too many times, it makes you sound like you feel you're entitled to sleep with anyone you choose and damn their feelings.

And never lie if someone who may sleep with you asks point blank, "Do you have HIV?"
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Lewis Bartholomew
Founder The Alberni Project
06:36 PM on 11/24/2012
Thank you. As someone who has been HIV for 27 years the telling was hard at first. Especially when I became a volunteer speaker about HIV to the medial and public meetings during the early years. My face was well known. However after years of what you mention, I stumbled on a wonderful man who is HIV neg and has stood by me and has laid next to me for 13 years. Sure, a lot of people know my health status, but it is far better acceptance than when I was living in the US just before I met my Canadian. I hope others will read what you wrote and take what they need from it. Even with HIV, there can be a happily ever after if you are true to your partner and honest with yourself.