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Families who care for people with schizophrenia once had an organization that gave them a national voice. They no longer do. This lack of national representation impacts not just our own situations; it also hurts the people we support, because they are often unable to advocate on their own behalf.
A lot of people perceive mental illness to be a burden and it's that perception that only furthers the stigma and prevents people from seeking treatment. But I believe my mental illness has helped to shape my life in a very positive fashion.
As National Family Caregivers month comes to a close, some caregivers have reason to celebrate as their concerns are receiving more attention than ever before. However, it's a precarious time for some of us. The organization that families caring for people with severe psychotic disorders had created has somehow slipped away from us.