The Coalition for Genetic Fairness says some people are already being denied insurance because they have a genetic predisposition for a particular disease.
Bev Heim-Myers of the Huntington Society, one of 15 patient groups in the coalition, says insurance companies can't ask for a genetic test simply because you check a box admitting to a family history of a disease or illness.
But she says they will deny coverage based on your family history if you refuse to get a genetic test, and failing to disclose what you know would also void your policy.
Dr. Ronald Cohn, who runs a DNA research lab at Toronto's Hospital for Sick Children, says many parents are afraid have their child tested or participate in clinical trials because of a fear of genetic discrimination.
Liberal backbencher Michael Colle introduced legislation to prohibit discrimination by insurance companies and employers on the basis of what he calls "genetic characteristics."