I've been suffering from a condition called Chronic Idiopathic Urticaria (CIU) for 15 years and I've always found something was missing: peer support. While the disease is quite rare, it does not mean support shouldn't exist for these rare people.
Kayla is a 19 year old from Pictou County, Nova Scotia living with Chronic Idiopathic Urticaria (CIU), a chronic skin disease. Although the disease causes physical and emotional pain, Kayla has learned to cope with it and believes in focusing on the positive impact she can make by sharing her experience. As a patient advocate, Kayla hopes to inspire a sense of hope and community amongst others suffering from CIU and has started an online support group that she hopes to develop into a patient support group for Atlantic Canada.
Affecting one per cent of the population, CIU causes hives, swelling, pain and itching for absolutely no known reason. The scariest part of this condition is the unpredictability. When will I swell up so much I need to go to the hospital? Will this ever go away? How do I plan my life?
08/31/2015 05:27 EDT
SUBSCRIBE AND FOLLOW
Get top stories and blog posts emailed to me each day. Newsletters may offer personalized content or advertisements. Learn more