living with autism
People on the autism spectrum have a unique view of the world.
Symptoms of ASD can vary wildly.
You'll understand like never before.
People with autism are not all violent, unthinking, unfeeling or uncaring, incapable of progress or love. When supported in a loving environment and by people who believe in them and their potential locked within, most of the kids can go on to be very successful and lead fulfilling lives with loving relationships.
For parents of children with special needs top that with a tenfold of anticipated stress and anxiety that accompanies the thought of maintaining a manageable environment while "doing Disney." Our main goal was to make this trip as easy and enjoyable as possible. Thinking through the many catalysts that could trigger a breakdown and the tools that we could use to manage them, here's how to take away the cringe-worthy worry, survive Disney with special needs, and keeping everyone smiling.
As a mentor for teens with autism and their families, I am struck with the level of trust, humility and indomitable spirit that I see in these families weekly on their paths to rising above others limitations of them. I would like to share one story with you from one of my clients and his mom's perspective.
Ah, that first visit to Santa. Remember how your little one cried and was scared, clinging to you? But you knew that this was temporary. Next year, he/she would be fine with the Santa visit, a rite of passage for most North American children today. But what if your child is not like all the other children?
By keeping our kids back from activities, we don't only do them harm by not exposing them to different experiences, we also deprive ourselves and the rest of our family from good, old-fashioned family fun. I used to be one of those overprotective parents when it came to my special needs son. Not anymore. I have to say that our adventures as a family have gotten better for the most part.
Autism has a bad rap with families and marriages. Pulling them apart. The stress, the constant worrying, the lack of time with your spouse and other children. The focus becomes your affected child and there is no time for you and forget about your partner. I thought my marriage was strong. It wasn't strong enough.
The problem is that an ASD is a permanent neurological disorder; it doesn't go away, but rather confirms itself over time. As parents of children with special needs, we each have to find our path. Over time, we all find our way. For me this was, and continues to be, a lesson in acceptance and redefining my values.