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Dying With Their Rights Intact

Posted: 12/15/11 06:27 PM ET

That was and still may be a phrase used by psychiatrists in Ontario to refer to the concept that those with serious untreated mental illness have the right to refuse treatment. Even though they suffer from a disease of the brain that impairs their rational thinking, most jurisdictions in North America have stringent legislation that makes it difficult to impose treatment. Without treatment, they often end up homeless, in jail, living on the streets, and harm themselves and/or others. And, because society allows them to refuse treatment, some die. But, their civil liberties remain intact. Or do they?

The B.C. author and advocate, Herschel Hardin, calls this "uncivil liberties." "Far from respecting civil liberties, legal obstacles to treating the mentally ill limit or destroy the liberty of the person." He originally wrote that in the Vancouver Sun in July of 1993 and it is still true today. And Hardin is no stranger to the concepts of civil liberty. He was a member of the board of directors of the B.C. Civil Liberties Association from 1965 to 1974, and has also been involved in the defence of liberty and free speech through work with Amnesty International. One of his children, however, has schizophrenia so he also knows first hand the problems of this horrible disease.

Left untreated, the disease will impair rational thinking and subject the individual to voices, delusions, and paranoia. They become, as Hardin said, "prisoners of their illness."

The civil libertarians often cite John Stuart Mill's On Liberty. That philosopher said that "the only purpose for which power can be rightfully exercised over any member of a civilized community, against his will is to prevent harm to others. His own good, either physical or moral, is not sufficient warrant." When Mill wrote that, however, there were very few effective medical treatments for anything let alone mental illness.

What the civil libertarians ignore, however, is the very next paragraph in which Mill states "those who are still in a state to require being taken care of by others must be protected against their own actions as well as against personal injury." (See Canadian Journal of Psychiatry article by Dr. Richard O'Reilly)

And that taking care of and being protected is what happens in some European countries. In Norway, for example, there are no homeless mentally ill people according to Dr. Thomas McGlashan of Yale University. In 2005, he told the LA Times that homelessness is banned. A mentally ill person would be connected with an outpatient clinic and be assigned to a regular doctor and a nurse. The LA Times writes, "Another key difference, the professor added, is a Norwegian philosophy that favours involuntary treatment rather than protecting the civil rights of patients who aren't well enough to know how sick they are."

One of the criteria for involuntary hospitalization in Norway is that the possibility of a cure or considerable improvement will be lost without treatment (P16). In the Netherlands, there are three interesting criteria -- that the person will become socially isolated, that he or she will neglect themselves, or that they will illicit aggressive responses from others (See page nine in the document that can be downloaded).

In the UK, one of the criteria for detention is that appropriate medical treatment be available, and it is for schizophrenia and other serious mental illnesses (See page two). In the three countries mentioned, sufficient safeguards do exist to protect the rights of the ill individual.

One method of assuring that people with serious mental illness receive the treatment they need is a non-hospitalized strategy called assisted outpatient treatment, or community treatment orders. This strategy allows courts to order certain individuals with brain disorders like schizophrenia or bipolar disorder to comply with treatment while living in the community. In New York State, it is called Kendra's Law and its results have been well researched. In a series of studies, it was found that this strategy increased adherence to medication use, reduced arrests of mentally ill people, and reduced hospitalizations, as well as less homelessness and fewer victimizations

While many Canadian jurisdictions do have some form of these orders, they are not used enough and the criteria for involuntary treatment are still too stringent compared to the countries cited above. The Select Committee on Mental Health and Addictions in Ontario did recommend that the guidelines for involuntary treatment be studied by another committee but that has not happened yet.

The Mental Health Commission of Canada is focusing their attention on evaluating the human rights of those with mental illness and on principals of social inclusion. They avoid talking about involuntary treatment. On page 10 of the commission's draft mental health strategy for Canada which they refuse to share broadly (see my previous Huffington Post blog), they talk about the UN Convention on the Rights of Persons With Disabilities.

They see the UN Declaration as an example of a social model of disability. This means in their words that disability is not an internal condition but rather something that arises from the way that external environments interact with people. However, serious mental illness is also internal. It is a disease of the brain and it needs to be treated.

When Canada signed this document, it did so by stating:

Canada recognises that persons with disabilities are presumed to have legal capacity on an equal basis with others in all aspects of their lives. Canada declares its understanding that Article 12 permits supported and substitute decision-making arrangements in appropriate circumstances and in  accordance with the law.

The Canadian government went on to say:

To the extent Article 12 may be interpreted as requiring the elimination of all substitute decision-making arrangements, Canada reserves the right to continue their use in appropriate circumstances and subject to appropriate and effective safeguards. With respect to Article 12 (4), Canada reserves the right not to subject all such measures to regular review by an independent authority, where such measures are already subject to review or appeal.

What our government said, in fact, is that there are circumstances when the state does need to ensure people receive the treatment that they need and that there are existing safeguards. Unless an individual is well, not delusional, not paranoid, not hearing voices, all the legislation on social inclusion will have no impact on that individual. We can best ensure the rights of these ill people by ensuring that they receive the treatment that they need.

 
 
 

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HUFFPOST SUPER USER
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12:51 PM on 12/25/2011
The need to be a danger to oneself or others is a criteria that is causing danger in and of itself. Being gravely disabled can be interpreted as being a danger to oneself, but it is not considered. The Olmstead decision, the supreme court decision that is often cited as a person's constitutional right to live and be treated in the community, is being taken out of context. The Olmstead decision stated that there are appropriate reasons to treat a person in an institutional setting, that it did not condone the release of patients into the community when they could not handle or benefit from it, or when proper supportive housing was not in place first. Yet this happens daily.

The Medicaid Institutes for Mental Diseases (IMD) Exclusion also has played a role in the denial of in-patient treatment and the premature release of patients who are not capable of living and benefitting from being treated in the community. This is a direct violation of the Olmstead decision, thus violates a person's constitutional right to appropriate treatment. It also stated that it did not condone the closing of hospitals, which has happened, partly due to the.medicaid IMD Exclusion The Medicaid IMD Exclusion is federally sanctioned discrimination.

The blatant disregrd for the Olstead Decision, the Medicaid IMD Exclusion, and the tight civil committment laws have resulted in a MILLION people with severe mental illness being incarcerated,, 200,000 more are homeless and many die, all too young, every day.
03:39 PM on 12/24/2011
I say there are serious systemic problems with the mental health profession. There is a long history of bogus treatments, the misuse of drugs, and more that has gone largely unaddressed. This is to say nothing of how accusations of mental illness are used to damage people's lives and careers, and more. There is a great deal of fraud associated with the field of psychiatry and psychology, so much so that it is difficult to describe in a few short words.

Suffice to say that from personal experience I have been subjected to years of serious physical and psychological abuse, without any legal recourse. One example should illustrate the dark nature of the situation. When I lived in Hamilton, in a single-bedroom apartment and without roommates, I experienced being regularly impaired with a drug or drugs that were being added to the milk in my refrigerator. That means someone was breaking in to my place while I wasn't there and adulterating my food. There were other factors as well, including the theft of small items, and access to my computers and private files. That is one set of circumstances in a small window of time, a full accounting would take weeks or months to set out.

In no instance was I ever spoken to by a psychiatrist, or anyone with official standing in the matter. This terrorism and abuse was simply completely extra-legal. And you, dear reader, will in all likelihood ignore this as well.
HUFFPOST SUPER USER
June Conway Beeby
09:48 AM on 12/24/2011
Marvin Ross' article is a perfect history and description of the quagmire of Canada's legal system which stalls and usually prevents treatment for those unwilling to accept treatment: seriously mentally ill (SMI) citizens,.Only appropriate and timely treatment can release them from the frightening hallucinations, delusions and other malfunctions of their brains that rob them of any hope for peace, or fulfillment in their lives. They are left to live a shadowy life as if in a Picasso painting, with a map constructed by their madness.

All we citizens have a moral responsibility to prevent this suffering of those citizens, who suffer with these no-fault, chronic, biological brain diseases, like schizophrenia, manic depression, clinical depression, severe anxiety, autism and the many other related diseases of the brain.

We like to show a public face to the world to convey our obedience to the concept of individual freedom. Even though there is zero freedom in a life filled with hallucinations and delusions, we allow laws to stand that ignore science instead of helping our citizens (indeed, the world) to understand the reality of these decades-old chronic brain diseases.

Now, we abandon innocent people, to respect of a freedom that doesn't exist for them.