It's a great PR move. The Ontario Liberal government has set up a website so they can solicit our views on various potential policies for their next election platform. But, for mental illness, they could look at and implement some of the recommendations they've ignored for years and for which they already have opposition backing.
In 2010, the all party Select Committee on Mental Health and Addictions released an excellent report that was based on 30 hearings around the province where over 230 presenters gave their opinions and recommendations and more than 300 submissions were presented to them. The committee was chaired by Kevin Flynn, a Liberal, while the vice chair was Christine Elliot, the Conservative health critic, and had members on it from all three political parties.
One of the recommendations in that report was to establish another group to change the privacy legislation so that caregivers of those with mental illness would no longer be excluded from being able to help their adult offspring. The report stated that "many people told the Select Committee of their frustration at being emotionally and financially responsible for their loved ones while not being considered a partner in care by the health care system." And that "some caregivers did not know that a loved one was in hospital, or about to be released, until he or she showed up at the door, or worse, was later found wandering the streets."
The all party group pointed out that British Columbia has a much better system in that their legislation allows for the release of personal health information to health care professionals, family members, and others involved in a client's care without the client's consent, for the purposes of continuity of care and if it is in the best interests of the client.
As the committee did not feel it had the expertise to suggest legislative changes, they recommended another committee be formed to do this. These changes, they said, should ensure that family members and caregivers providing support to, and often living with, an individual with a mental illness or addiction have access to the personal health information necessary to provide that support, to prevent the further deterioration in the health of that individual, and to minimize the risk of serious psychological or physical harm.
And, of course, if you set up a system that facilitates care and prevents further deterioration, you save the taxpayers money while also improving the well being of the ill individuals and their families.
We are still waiting Ms Wynne. But, since that ignored recommendation, the Mental Health Commission of Canada released its own report on caregivers. And they went even farther than the Select Committee.
Some of their recommendations are:
Health Minister Deb Matthews is already enamoured with a pilot program at St Joseph's Healthcare in Hamilton that utilizes a similar approach. She is providing funding for a program called the Integrated Comprehensive Care Project where patients are provided with a a co-ordinator who organizes their care in hospital and the community right from the moment they are referred to St. Joseph's. A contact is available 24 hours a day so patients can be immediately directed to the right provider when there are issues.
Imagine the benefits if people with mental illnesses and their families could partake in this? Family caregivers could receive information on their ill loved one and be able to provide on going information on progress and problems to the co-ordinator. As the hospital president, Dr David Higgins, said "we are breaking down barriers. We're engaging people and driving innovation to ultimately transform the patient and family experience."
A Danish study recently published in the Canadian Journal of Psychiatry looked at the outcomes for over 10,000 patients with schizophrenia who were released from hospital from January 2004 to March 2009. They found that both medication and staff contact with relatives were processes of care that resulted in better outcomes.
The current Ontario family frustration was expressed to me after my keynote address on caregiving to the Family Association for Mental Health Everywhere (FAME) Annual General Meeting on Sept. 24. A number of parent caregivers spoke to me after and expressed displeasure with the absurdity of their being cut off from the health system when they were the primary caregivers for their over 18 children. One parent pointed out that the hospital always called for information when his son was in hospital but then refused to talk to him when he called to discuss his son with them.
Involving the family is such a simple solution that is easy to implement and that will do so much good on so many levels. It is time, Premier Wynne.
20% of Canadians will personally experience a mental illness in their lifetime - Canadian Mental Health Association
Anxiety disorders affect 5% of the household population, causing mild to severe impairment - Canadian Mental Health Association
About 1% of Canadians will experience bipolar disorder (or “manic depression”) - Canadian Mental Health Association
Suicide accounts for 24% of all deaths among 15-24 year olds and 16% among 25-44 year olds - Canadian Mental Health Association
The mortality rate due to suicide among men is four times the rate among women - Canadian Mental Health Association
Approximately 8% of adults will experience major depression at some time in their lives - Canadian Mental Health Association
Schizophrenia affects 1% of the Canadian population - Canadian Mental Health Association
The total number of 12-19 year olds in Canada at risk for developing depression is a staggering 3.2 million - Canadian Mental Health Association
Almost one half (49%) of those who feel they have suffered from depression or anxiety have never gone to see a doctor about this problem - Canadian Mental Health Association
Once depression is recognized, help can make a difference for 80% of people who are affected, allowing them to get back to their regular activities - Canadian Mental Health Association
Mental illness is increasingly threatening the lives of our children; with Canada’s youth suicide rate the third highest in the industrialized world - Canadian Mental Health Association
It is estimated that 10-20% of Canadian youth are affected by a mental illness or disorder – the single most disabling group of disorders worldwide - Canadian Mental Health Association
First Nations youth commit suicide about five to six times more often than non-Aboriginal youth. The suicide rates for Inuit are among the highest in the world, at 11 times the national average, and for young Inuit men the rates are 28 times higher - Mental Health Commission of Canada
In Canada, only 1 out of 5 children who need mental health services receives them - Canadian Mental Health Association
Rates of mental illness for adults between the ages of 70 and 89, including but not limited to dementia, are projected to be higher than for any other age group by 2041 - Mental Health Commission of Canada
The vast majority of people living with mental health problems and illnesses are not involved with the criminal justice system. In fact, they are more likely to be victims of violence than perpetrators - Mental Health Commission of Canada
Among those with the most severe and complex mental health problems and illnesses, unemployment is estimated at between 70 and 90 per cent - Mental Health Commission of Canada
The economic cost of mental illnesses in Canada for the health care system was estimated to be at least $7.9 billion in 1998 – $4.7 billion in care, and $3.2 billion in disability and early death - Canadian Mental Health Association
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