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Meghan Telpner

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Why Find a Cure When the Search is So Darn Lucrative?

Posted: 07/04/2012 12:02 pm

Last week I had the pleasure of attending the Canadian Breast Cancer Foundation's 10th annual Cook For The Cure.

As you can imagine, this sounded like my kind of thing; a fundraiser for a cure that involved cooking!

The idea was that guests would give a $20 contribution which would include a complimentary glass of wine and dessert. They were asked to wear white,  pink accents would be provided and to bring their own food as part of the "Pinknic."

I don't actually have any white clothes.

I spent some time wandering around, peeping in on what people brought, and chatting with some of the guests.

What I wanted to know from the people in attendance is what they were doing in their own lives to help cook up a cure, or rather, working to prevent the disease in the first place. I got a lot of blank stares and embarrassed declarations that they don't really think about it as much as they should.

When I asked if they knew where the funds for the evenings event were going, the blanket response was "research".

Apparently $2.1 million has been raised through the Cook For The Cure initiative for breast cancer "research" since 2002 but no one seems to know just what that research is. There are grants being awarded and loads of products being painted pink but breast cancer rates continue to increase and treatment options don't seem to be improving or diversifying.

Could it be that there is a missing link with a lack of sound knowledge around prevention, namely an awareness of what each and every one of us can do every day to reduce our risks?

On the Breast Cancer Foundation of Canada website it claims that "Since 2000, the Foundation has funded $12.1 million in research grants and training fellowships focussing on prevention and risk factors."

The only prevention related study mentions a connection between high fat diets and charbroiled food increasing the risk, but no further info was offered. Strangely, back in the fall when I was emailing the foundation about the current prevention related research being done, they told me they were sorry they hadn't gotten back to me but they were having problems with their email server. I still never got an answer.

Heres the thing. It's 2012 and this is what is listed as risk factors on the Cancer Foundation's website:

Non-Modifiable Risk Factors

Gender and age

Personal cancer history

Family cancer history and genetics

Early menstruation and late menopause

Breast density

Breast conditions

Modifiable Risk Factors

Body weight

Physical activity

Alcohol Use

Smoking

Exposure to hormones: the Pill, IVF, and HRT

Pregnancy and breastfeeding

Radiation exposure


Did you see diet, cosmetics or cleaning products on those lists? Me neither! What about the fact that the food we eat impacts our epigenetics, meaning our genetic expression, or how our DNA is going to work for us or against us?

The fact that the food and cancer connection is left out of the  "Cook For The Cure" event, may explain why this year's feature chef's table was laden with deep fried chicken, cheddar biscuits, platters of charcueteri (fancy word for cold cuts) and even a duck pie for the Pinknic.

I am all for getting into the spirit of things and enjoying treats in the spirit of celebration. It gets a bit trickier when that spirit of celebration is working to raise funds for cancer research and the very foods being served are known contributors to the development of the disease (remember the deep-fried Twinkies for Crohn's Disease?).

I am going to assume that the deep fried chicken, cheddar biscuits, duck pie and charcuterie were all locally sourced and organic, but was this the best choice for a breast cancer fundraiser?

You may remember the hoopla from a few years ago when KFC was attempting to cash in the Breast Cancer theme with pink buckets of fried chicken?

Deep fried chicken, as well as barbecued, pan fried, and high heat grilled, all have been found to contain high levels of heterocyclic amines (HCAs) and benzo[a]pyrene (BaP), which are known carcinogens.

I am sure the fried chicken and biscuits were amazing if you like that. And any other picnic? Fine, the choice is the eater's -- but for a cancer fundraiser?!

Aside from the pink accents, there was nothing about this event that seemed to connect it with a disease that will affect one in nine women.

As with most Breast Cancer fundraising efforts -- which includes everything from plastic bottled water, pink ribbon wine, and carrying sponsors like Revlon, PepsiCo, Kernels popcorn and Egg Farmers of Canada who all produce the very products that contribute to the modifiable risk factors of the disease -- I'm thinking that "finding the cure" is a ways away. The search is just so lucrative.

If $12 million hasn't found the cure, is $13 million going to do it? How about $20 million? How much are we going to give before we realize that maybe they're looking in the wrong places?

Given that our food and lifestyle choices are so closely connected with everything from the prevention of cancer right through to the recovery post-medical intervention should we get sick, it would seem to me that this event and the hundreds of others just like it, are prime opportunities to engage the public in how they could start to cook for the cure in their own lives.

For this Cook for the Cure event, easy things could have included:


  • Getting some local farms on board to lend greens to every table so everyone's Pinknic would include some fresh green salad.

  • Picnic suggestions sent out upon registration that include meals and recipes with key cancer fighting foods.

  • Water fountains to offer the opportunity for guests to get water without needing it to come from plastic (BpA found in plastic bottles leaches synthetic estrogens and are linked with an increased risk of breast cancer).

The challenge with these types of fundraising events is that, yes, in theory they are for great causes, and people donate so much time and resources to making them happen, but are the organizations including the Breast Cancer Foundation of Canada, really engaging the donors that they rely on to take precautions against the diseases for which they are fundraising? Are they really informing people on what can be done NOW, rather than once their cancer has been detected early? Early detection is not prevention! (Tweet today's tweetable).

The parting gift for this event was a garlic press. Fantastic. A total win as garlic works to prevent every kind of cancer out there. But  attached to the garlic press was a recipe for raspberry frosted cupcakes (a pink recipe of course) loaded with white flour and sugar, the primary fuel to feed cancer.

It just doesn't connect.

I fully appreciate the importance of finding cures for these increasingly common diseases and the great work these foundations do in supporting people emotionally during recovery, but there is a consistent lack of attention being given to prevention and to the nutritional and lifestyle connection that not only helps prevent but can serve to ease and accelerate post operative/treatment recovery. To ignore this fundamental key to health is radically irresponsible.

Early detection, more effective treatments, new drugs, and new procedures, are great for those who choose that path, but with cancer rates only increasing every year, when does the importance start being placed on individual responsibility to own our health and strive to prevent the diseases in the first place? Again, I stress that early detection is not prevention!

If you choose to support any fundraising organizations, I commend you for your generosity and also recommend that you take a close look at the financial reports and research projects for which you are funding to ensure that they really support what you want to be supporting.

 

Follow Meghan Telpner on Twitter: www.twitter.com/@meghantelpner

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Last week I had the pleasure of attending the Canadian Breast Cancer Foundation's 10th annual Cook For The Cure. As you can imagine, this sounded like my kind of thing; a fundraiser for a cure that i...
Last week I had the pleasure of attending the Canadian Breast Cancer Foundation's 10th annual Cook For The Cure. As you can imagine, this sounded like my kind of thing; a fundraiser for a cure that i...
 
 
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HUFFPOST SUPER USER
John David Payne
godisimaginary
03:21 AM on 07/06/2012
For the first time a voice in the wilderness! I have got to offer congrats to Meghan Telpner. She has hit the nail on the head about fund raising for cancer, breast cancer or others. Over the years many billions have been spent in cancer research and very little has come from this vast amount of giving...by individuals and governments. what has happened is many industries have grown by way of getting on the charity band wagon and then appearing indespensible....what may I ask does a pink ribbon contribute to anything, except maybe the patent owner or the people that sell the ribbon. I note there has been some progress in the area of leukemia but can anyone name anything in recent memory...I am talking about a cure here. Face it nobody connected to the research nor the Cancer Societies throughout the world is interested in finding a cure...they would then have to find another job. One big gravy train!!! Prevention is the best answer but nobody is stressing this in mainstream media let alone the medical field...whose grasp of nutrition is non-existant
01:06 AM on 07/06/2012
I'm glad to see someone speak about this. I participated in the Breast Cancer Weekend 5 years ago, the summer after a very dear friend died from breast cancer. I came away disgusted with the "machine" that was there - I was insulted by the "touching" images as everyone filed into the finale. I felt like I was being manipulated and used by the fundraising "corporation" that ran this event. So extravagant! So sickening.

It was at that point that I decided I would never again donate money to such a massive organization. I chose to donate my money to local groups, where I know people are really benefiting. Organizations that make a real difference in people's lives. The Lions Clubs, Kinettes, Transportation Societies. The folks that drove my friend to her chemo appointments.
07:50 PM on 07/05/2012
cancer X prize
CURE

just pick one type and give 10 million or even a billion to the team that arrives at a cure.
not the - if you live past 5 years you were cured - nonsense from the disease management system we currently have but something actually meaningful.
07:46 PM on 07/05/2012
FINALLY a decent article about the cancer money machine. nice to see the supportive comments. i wish ppl would have a more critical approach.
well done!
05:15 PM on 07/05/2012
"What I wanted to know from the people in attendance is what they were doing in their own lives to help cook up a cure, or rather, working to prevent the disease in the first place. I got a lot of blank stares and embarrassed declarations that they don't really think about it as much as they should."

An interesting question to add to that would have been asking what they were doing on a personal level for people they know who have cancer. Giving is not only about funds.

"Early detection, more effective treatments, new drugs, and new procedures, are great for those who choose that path, but with cancer rates only increasing every year, when does the importance start being placed on individual responsibility to own our health and strive to prevent the diseases in the first place? Again, I stress that early detection is not prevention! "

I know of, and have met, plenty of healthy, thin, exercising, non-smoking, breastfeeding etc etc etc women who have had breast cancer. Lots of people are and were taking individual responsibility and still drew the wrong number in the cancer lottery. The statement above kind of hints at blaming cancer patients for their cancer because they didn't eat right or exercise enough, didn't have kids or had a few drinks on the weekend. Believe me when I say we already blame ourselves plenty.
12:00 PM on 07/05/2012
I'm biased. My mum died from lung cancer over 30 years ago, the same treatments are being used today. No vast improvement.

Researchers may not be making millions of dollars a year but they do quite nicely. There is a public service database that will tell you what they make (at least in BC). Just google it.

Money is raised for fancy buildings as well. A lot of money.
HUFFPOST SUPER USER
sgillhoolley
Occupy the discussion.
11:19 AM on 07/05/2012
Some people foolishly believe that a free market system in healthcare will lead to more cures than a government run system. I say foolishly because this belief flies in the face of common sense. Let me explain. If you ran a healthcare corporation, would you rather find a cure to a disease, and thus only get paid once per customer, or would you rather treat that disease, and have the customer come back again and again and again? It is simple logic at play. Only when we remove the profit motive can we expect the best from our healthcare professionals.
12:34 PM on 07/05/2012
Healthcare "systems" don't find cures, they only find treatment efficiencies.

Health RESEARCH funded by non-profit sources (govt/charity) do find cures, or at least treatments.

That said, high end cancer centers in the USA do find new and improved cancer treatments because it is in their marketing best interests to have the newest/latest/best treatments available to offer to their patients. In order to keep their arsenal fresh they provide protected research time and budget to their academic staff who in turn generate new diagnosis and treatment options.
HUFFPOST SUPER USER
sgillhoolley
Occupy the discussion.
05:12 PM on 07/05/2012
Yes, plenty of treatments.  Treatments must be continued to work, and cost money each and every time.  Cures are one-shot payments.  Non-profit research is the only kind I trust.  Unfortunately, the government uses tax dollars to fund research, and then gives the results away to corporations for a song.
11:00 AM on 07/05/2012
I stopped donating to anything associated with 'cancer research' long time ago. Why aren't we taking the fight against cancer where it originates: our food, our water and our air - remove the carcinogens. This is a self-supporting, lucrative business - feeding off people's hopes for a cure.
10:52 AM on 07/05/2012
very courageous of you! Thanks
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HUFFPOST SUPER USER
Pondering panda
10:34 AM on 07/05/2012
great read. this is why i dont add a dolar to my bill at the grocery stores for whatever charity its going to. you ask the cashier, "how much of this will go to the charity" and you get a blank stare in response.
08:38 AM on 07/05/2012
Great article. I don't feel enough decent research has been done on treatments like Essiac. I have stopped donating. The way the neuro's have shunned CCSVI as at least a large part of the problem with respect to MS has added to my cynicism. That and the way the researchers have designed vaccine safety studies, never studying vaccinated VS unvaccinated.
07:30 AM on 07/05/2012
You are so right! Thank you for writing this. Not only are these types of fundraisers hypocritical and irresponsible - and basically a total farce - the bulk of the money raised goes into the pockets of the chemical companies. Yes - there are billions to be made from cancer - the chemical companies make $$$ from the garbage they put into our food, water, and air - and then they make $$$ from useless drugs. It's all about profit, nothing else.
07:04 AM on 07/05/2012
Well done! We all need to be more vocal about demanding that these organizations are more accountable.
HUFFPOST SUPER USER
sgillhoolley
Occupy the discussion.
11:20 AM on 07/05/2012
Demands will not be met. Your criticisms will be ignored. As long as they profit from the system as it is, they will fight to maintain it as it is. We need to remove all profit from healthcare.
01:21 AM on 07/05/2012
There are many things like this, FIND the Solution and the gravy train stops......A cure is the absolutely last thing they want...
11:29 PM on 07/04/2012
Thank you, Meghan... you speak your mind and mine.