Special Needs

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I Just Did What I Swore I'd Never Do With My Child

What kind of mom drugs her kid? The mom who is tired of walking on eggshells, wondering who her child will hurt today. The mom who is tired of watching her baby suffer inside his own skin. The mom who, fighting back tears, dutifully takes the scrap of paper from the doctor with the round glasses.... What mom does that, anyway? The kind who will do whatever it takes to help her child feel better, even if it means doing precisely the thing she vowed never to do.
Marcy White

Leaving My Severely Disabled Son To Go On Vacation

It's been almost a year since Jacob last attended school, his immune system too weak to risk exposure to even a simple cold. Nothing with Jacob is ever simple. Life goes on, days stretch into weeks and before I realize it, nine years pass without time away for my husband and I to unwind and relax together.
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5 Ways To Handle Spring Fever, Special Needs Style

I know for my son, when Spring hits, so do more sensory challenges, particularly when the weather zigzags between hot, cold, rainy, humid etc. What's a parent to do grappling with regular spring fever, and not wanting to do homework combined with bigger sensory issues? Though it requires some minor tweaking each year, I have come up with 5 ways that help our family survive Spring Fever each year.
Marcy White

Homecare Nursing Problems Affect The Whole Family

The past half-year has been hard on all of us, each family member affected in different ways. I can only begin to imagine how uncomfortable and awkward it must be for Jacob to have so many strange caregivers, some with questionable skills, performing intimate tasks including bathing and suctioning.
Courtesy of Blogger

What A Difference A Year Makes

Last year at this time, I was helping Jacob settle in to his new school, working closely with his teacher and the school's Vice-Principal to ensure a smooth transition. This year, instead of arranging Jacob's uneventful passage to grade seven, my energy is focused on ensuring that Jacob remains healthy and strong.